Posts tagged Struggle

Prayers for Faith

As I mentioned in my last post, Faith has been struggling since we weaned her from the diazepam. She has been very restless and agitated. She is barely sleeping at night. She just cries and screams when she is going through these rough episodes of extreme involuntary movement(chorea) and increased muscle tone. Faith has rough […]


Happy 18 Months!

Faith is 18 months old today! Wow, Faith is going to be 2 years old before we know it! The last week or so we have observed Faith doing some great things. She is starting to learn to play better with toys. She is trying to roll over more and more. She can get about half way right now. […]


17 Month Update

I am running low on physical and emotional energy right now so this will be a quick update.  We continue to be very sleep deprived and are just trying to get through each day. Faith is averaging a total of 5-6 hours of sleep a day. We are lucky if we can get a 2-3 hour stretch of sleep at a […]


Life is busy!

Just wanted to write a quick post to update everyone since it has been a while since I last posted. Life is busy! Mama is back at work teaching some summer classes so Faith is spending lots of time with her grandparents.  As you can see in the picture, Faith and Trinity are getting along […]


Home for the Holidays

Faith was discharged today from the hospital with a NG tube that will help her get adequate nutrition until a G tube can be put in next week. Faith will return to the hospital next Tuesday for the surgery. As of now, we do not have a definitive answer for what is causing Faith not […]


SuperBabyFaith Discharged From Hospital

SuperBabyFaith turned 3 months old today! Wow, it is amazing all that has happened in the past few months. The last few weeks have been tough for Faith. She has been struggling with her feedings. Last week at a doctor visit, she had lost a significant amount of weight and was admitted to the hospital. […]