Posts tagged Stomach

Spring Update

It is hard to believe that Faith’s first year of school is almost over! It seems like I just posted her first day of school pictures and now it is May and Faith’s regular school year ends this week! Faith had a great transition to school and has done very well. Faith will attend a […]


Exhausting the Options

Faith’s last two weigh-ins have been rather discouraging. She is just not gaining weight despite everything we are trying. Today, she actually lost weight. Not a horrible loss (about 100 grams), but still a loss. This just makes no sense to me or Faith’s dietitian for that matter. Over the last three weeks, we have […]


Keeping the faith…

So far October has not been the most encouraging month. We have had several follow-up appointments with specialists and further testing to dig deeper into Faith’s feeding issues. Faith had her follow-up appointment with her endocrinologist and not surprisingly she has really not gained any weight in six months. We have a phenomenal dietitian that […]


A Trip to the Magic House

The last week or so has been very rough for us. Faith is barely sleeping at all at night so we are running on fumes right now.  Nevertheless, we still always try to keep up with life and seek out positive experiences for Faith! This past Sunday, the Magic House in St. Louis opened its doors free […]


Another Road Trip…

We spent this past week at the Mayo Clinic again. We had a full week of consultations with doctors, follow-up appointments, and tests. It was very overwhelming and draining in many ways but we did got some things sorted out. We started the week off with Faith’s MRI. It went well and the results are […]