Posts tagged Scream

Prayers for Faith

As I mentioned in my last post, Faith has been struggling since we weaned her from the diazepam. She has been very restless and agitated. She is barely sleeping at night. She just cries and screams when she is going through these rough episodes of extreme involuntary movement(chorea) and increased muscle tone. Faith has rough […]


Conformers, the process begins…

Faith went to the ocularist today and got her first set of conformers. The ocularist worked for quite awhile until he got the conformers to fit on both sides. Her openings are very small so it was a bit challenging. The ocularist had to use the pegs otherwise it would be really tough to get […]