Posts tagged Reflux

Three Years Ago…

Three years ago this week, we pulled out of the driveway of our home in Texas for the last time. The place that we were so excited to bring our precious baby girl home to and where we planned to raise our family. We left a church family that we loved, I resigned from my […]


Summer Struggles

Faith has really been struggling the past few weeks. Nights have been rough and seem to be getting worse each night. Faith is waking and crying A LOT during the night and just seems so miserable and uncomfortable. We have had nights with hours of crying and a miserable little girl. We have had nights […]


Making progress…

Faith has been doing really well this past month. She seems so much happier, healthier, and just more comfortable in general. The only real change that we made was starting her on Baclofen. This medication is used to reduce muscle tone. Not sure if it just a coincidence, but it really seems to be helping […]


A New Year…

We are hoping that 2012 will bring progress and resolution to many things for Faith! Faith is still struggling with reflux and gas issues that can make her very miserable at times. We are still trying to get her back to handling the rate we were at with her tube feedings before she got sick. […]


Trying to get back to baseline…

The last few weeks have been pretty rough for Faith. We have had two long ER visits and a hospital admission. About two weeks ago, Faith started with a stomach virus that took its toll on her little body. She had severe vomiting which resulted in her needing IV fluids. We just couldn’t get enough […]


Exhausting the Options

Faith’s last two weigh-ins have been rather discouraging. She is just not gaining weight despite everything we are trying. Today, she actually lost weight. Not a horrible loss (about 100 grams), but still a loss. This just makes no sense to me or Faith’s dietitian for that matter. Over the last three weeks, we have […]


What a Big Girl!!

Faith just transitioned to her big girl car seat! She is looking very healthy in this photo! We are so thankful for Faith’s growth! She is still in the less than 3 percentile for her age, but for her height and weight she is in a healthy range. Sorry, for the delay since my last […]


Out and About

Faith has been struggling with getting over being sick. It seems like she is always sick or trying to get over being sick. The last 4 weeks or so she has been running fevers or at least low-grade temps. She was also very congested, had a bad cough, and was vomiting. Faith’s reflux has also been really […]


17 Month Update

I am running low on physical and emotional energy right now so this will be a quick update.  We continue to be very sleep deprived and are just trying to get through each day. Faith is averaging a total of 5-6 hours of sleep a day. We are lucky if we can get a 2-3 hour stretch of sleep at a […]


Miracle on Faith Street

It seems that Faith’s little body has finally figured out how to sleep. Some nights are better than others but compared to what we had been dealing with we are feeling relieved. Since Faith got relief from the congestion, she has had a couple of nights that I think we can actually say that she “slept […]


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