Posts tagged Prayers

Hope for Spring

It has been a rough winter for Faith. Pneumonia, RSV, rhinovirus, coronavirus, and other undetected viruses have sure taken their toll on Miss Faith. We have spent a lot of time in the hospital the past few months. We are truly ready for spring with the hope that it will bring good health for our […]


Prayers for Faith

As I mentioned in my last post, Faith has been struggling since we weaned her from the diazepam. She has been very restless and agitated. She is barely sleeping at night. She just cries and screams when she is going through these rough episodes of extreme involuntary movement(chorea) and increased muscle tone. Faith has rough […]


Summer Struggles

Faith has really been struggling the past few weeks. Nights have been rough and seem to be getting worse each night. Faith is waking and crying A LOT during the night and just seems so miserable and uncomfortable. We have had nights with hours of crying and a miserable little girl. We have had nights […]


Little Miss Giggles!!

Faith is continuing to be doing really well! She is all smiles these days! It is just so incredible for us to see her so happy! I even captured one of her giggle moments on camera: IMG_0096 It seems that Faith is really recognizing our voices more consistently and that we are making some progress […]


Happy 2nd Birthday, Faith!

Today, we celebrate Faith’s 2nd birthday! Life continues to be challenging and definitely not without struggles, but we are so grateful for our Super Baby Faith. She is such a blessing and we couldn’t love her more! It is hard to believe that next year at this time she will be starting school and getting […]


23 Months

  Faith went peach picking for the 1st time a few weeks ago. It was a pretty hot day so we went early in the morning and didn’t stay outside long. Faith struggles with body temperature regulation so we knew we had to be cautious but still allow her the experience. In less than a […]


Run for Sight 2011

Team Super Baby Faith participated in the Run for Sight again this year to benefit the Delta Gamma Center for Children with Visual Impairments. Great job, Team Super Baby Faith for raising¬† $1,595.00. We truly appreciate¬†everyone who ran or walked on Sunday, or made a donation if you couldn’t be at the event. The Delta […]


Happy New Year!

We will be starting the new year off with many doctor appointments, consultations, and tests. January is going to be a busy month! Life continues to be very fast-paced for us with no sign of things slowing down anytime soon. We are hoping that we can get more information and answers to help Faith. Please […]


Smiles! :)

I really don’t think there is anything better than Faith’s incredible smile! It makes my heart so happy to see her happy and content! The last few days we have seen so many smiles. I think Faith is making up for the several weeks that she just wasn’t feeling well. After almost 5 weeks of […]


September Wrap-Up

Wow, it seems like September just started! As always, it has been another busy month of doctor appointments, therapy sessions,and fun times outdoors. September was a month of many firsts. As I mentioned before, we are really trying to get Faith out more to explore the world. During this month, Faith attended her first softball […]


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