Posts tagged Pneumonia

Hope for Spring

It has been a rough winter for Faith. Pneumonia, RSV, rhinovirus, coronavirus, and other undetected viruses have sure taken their toll on Miss Faith. We have spent a lot of time in the hospital the past few months. We are truly ready for spring with the hope that it will bring good health for our […]


Stuck…

Faith has been sick for almost 6 weeks now. She has been stuck at this same point for the most part since we brought her home from the hospital. We still cannot completely get her off oxygen. We get her off for a day or so and then have to put her back on. Last […]


Christmas Struggles 2013

FYI-I started writing this post before Faith went into the hospital and just never got a chance to finish it. I picked up where I left off so it has ended up much longer than I had anticipated. Just wanted to write a quick post with a few updates but mostly to wish everyone a […]


Prayers for Faith

As I mentioned in my last post, Faith has been struggling since we weaned her from the diazepam. She has been very restless and agitated. She is barely sleeping at night. She just cries and screams when she is going through these rough episodes of extreme involuntary movement(chorea) and increased muscle tone. Faith has rough […]


Happy 4th Birthday, Super Baby Faith!

As I type this post, I feel so grateful for so much! I thank God for every day with Faith; every smile, every cuddle, every response that indicates understanding. I get emotional as I type this because I know things could be so different. The outcome could have been so much worse many times. I […]


Summer Struggles & Decisions

We have spent a bit more time at the hospital this week than we had planned on. Faith has had a lingering cough for about 2 months now. For the most part, she has always struggled with clearing her throat and managing her own saliva. However, she was doing much better for awhile after we […]


Three Years Ago…

Three years ago this week, we pulled out of the driveway of our home in Texas for the last time. The place that we were so excited to bring our precious baby girl home to and where we planned to raise our family. We left a church family that we loved, I resigned from my […]


Summer Struggles-Part 2

Unfortunately, since my last post Faith’s struggles continued. The extreme agitation, inconsolable crying, and rough nights left us very helpless, frustrated, and exhausted. I had been talking with neurology every few days trying to figure out what was going on with Faith as they were convinced that muscle tone was the cause of Faith’s discomfort. […]


Rough Week for SBF

Last week, Faith became a big sister! On the same day, Faith ended up in the ER with a very high temperature and was diagnosed with pneumonia. Luckily, she was able to go home and stay with grandparents as Mike and I were in the hospital with our new baby boy, Graeme. As the week […]


Playing catch up…

I will be playing catch up on this post and will try to summarize what Faith has been up to. I am super busy these days so I just haven’t had the time to post in awhile. Faith is now 21 months old! Faith is definitely making progress with her motor skills, it is slow […]


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