Posts tagged Patience

September Out and Abouts

I am happy to report that Faith has been healthy the last few months!! We are hoping this pattern will continue throughout the fall! Faith has lost some weight so we are working hard to get her weight back up. We had to increase the volume of her tube feedings since she is still not […]


23 Months

  Faith went peach picking for the 1st time a few weeks ago. It was a pretty hot day so we went early in the morning and didn’t stay outside long. Faith struggles with body temperature regulation so we knew we had to be cautious but still allow her the experience. In less than a […]


Faith Update

Things have been a bit hectic since my last post. Faith was a sick little girl! She ended up being admitted to the hospital last week for a couple of days. She was admitted due to respiratory distress. Her respiration rate was double what it should have been, her breathing was very rapid, and overall […]


Happy 10 Months, Faith!!

Ten months ago today, Faith joined us in this world! Faith is growing well and reached the 16 pound mark this past month. We are so thankful for her growth and improved health. Faith is showing progress. Her trunk extension has improved and she is tolerating time on her tummy much better. Along with her […]