Posts tagged Neurologist

Chorea

Faith had her appointment at the movement disorder clinic this past week.¬† The neurologist observed Faith and explained Faith’s movement using the term, “chorea”. According to the NIH, chorea is an abnormal involuntary movement disorder, one of a group of neurological disorders called dyskinesias, which are caused by overactivity of the neurotransmitter dopamine in the […]


Fall Fun

Finally, I got a chance to post a few pictures from Faith’s birthday! Hope you enjoy the smiles! ūüôā Faith is continuing to do very well at school. It is hard to believe that she has already been in school for 2 months. Time is flying! Thankfully, with the exception of a sinus infection Faith […]


A New Year…

We are hoping that 2012 will bring progress and resolution to many things for Faith! Faith is still struggling with reflux and gas issues that can make her very miserable at times. We are still trying to get her back to handling the rate we were at with her tube feedings before she got sick. […]


Happy 18 Months!

Faith is 18 months old today! Wow,¬†Faith is going to be¬†2 years old before we know it! The last week or so we have¬†observed Faith doing some great things. She is starting to learn to play¬†better with toys. She is trying to roll over more and more. She can get about half way right now. […]


Renewed Hope

We had another busy week of doctor and therapy appointments. We met with several new doctors this week. While we were waiting to get into the new GI doctor, we tried Faith on continuous feedings which I mentioned in our last post. This proved to be a good decision for us. It seems that for […]


Faith’s 1st Easter

There has been lots going on with Faith lately and we are in the process of trying to figure out what is causing the issues with Faith. Right now, along with other things her temperature regulation is a concern. We are trying to get Faith in to a neurologist as soon as possible. We are […]


Home for the Holidays

Faith was discharged today from the hospital with a NG tube that will help her get adequate nutrition until a G tube can be put in next week. Faith will return to the hospital next Tuesday for the surgery. As of now, we do not have a definitive answer for what is causing Faith not […]


AGAIN!

Faith was admitted to the hospital AGAIN last night! This is Faith’s 3rd admission this month. Faith is continuing to struggle with eating.¬†The two days¬†prior to her admission she was going extremely long periods of time with minimal comsumption. I have been doing lots of research and gathering more suggestions from the geneticist and genetic […]