Posts tagged Mutation

Three Years Ago…

Three years ago this week, we pulled out of the driveway of our home in Texas for the last time. The place that we were so excited to bring our precious baby girl home to and where we planned to raise our family. We left a church family that we loved, I resigned from my […]


A New Year…

We are hoping that 2012 will bring progress and resolution to many things for Faith! Faith is still struggling with reflux and gas issues that can make her very miserable at times. We are still trying to get her back to handling the rate we were at with her tube feedings before she got sick. […]


ican conference 2011

We attended the International Children’s Anophthalmia/Micropthalmia Network (ican) conference this past weekend in Boston, MA.  This was Faith’s first time flying and she did an awesome job. We got very lucky and she slept on both flights! We started off our time in Boston by participating in the multidisciplinary clinic at Tufts Floating Hospital for […]


Miracle on Faith Street

It seems that Faith’s little body has finally figured out how to sleep. Some nights are better than others but compared to what we had been dealing with we are feeling relieved. Since Faith got relief from the congestion, she has had a couple of nights that I think we can actually say that she “slept […]