Posts tagged Muscles

New Findings, New Questions, New Treatment

Faith’s muscle tone has been a concern of ours for quite some time now. It makes her uncomfortable and is affecting her ability to make progress in many areas. Faith has very low tone in her trunk and neck and tends to have increased tone in her extremities. She struggled even as an infant being […]

September Out and Abouts

I am happy to report that Faith has been healthy the last few months!! We are hoping this pattern will continue throughout the fall! Faith has lost some weight so we are working hard to get her weight back up. We had to increase the volume of her tube feedings since she is still not […]

Philadelphia-Is it Feasable?

I spent almost an hour on the phone this morning with the nurse practitioner that works with a Pediatric Ophthalmologist and a Pediatric Oculo Plastic Surgeon at Children’s Hospital of Philadelphia (CHOP). Instead of using conformers, he uses hydrogel implants to expand the eye socket. They basically do the same thing as conformers which keep the eye […]