Posts tagged Geneticist

Decisions…

Faith’s last few doctor appointments have left us with some decisions to make. Decision #1-Tonsils and Adenoids Removal We saw Faith’s geneticist about a month ago and she was concerned with Faith’s baseline breathing and recommended that we schedule a visit with Faith’s ear, nose, and throat (ENT)  doctor. Faith has always been a loud […]


ican conference 2011

We attended the International Children’s Anophthalmia/Micropthalmia Network (ican) conference this past weekend in Boston, MA.  This was Faith’s first time flying and she did an awesome job. We got very lucky and she slept on both flights! We started off our time in Boston by participating in the multidisciplinary clinic at Tufts Floating Hospital for […]


Faith’s 1st Easter

There has been lots going on with Faith lately and we are in the process of trying to figure out what is causing the issues with Faith. Right now, along with other things her temperature regulation is a concern. We are trying to get Faith in to a neurologist as soon as possible. We are […]


AGAIN!

Faith was admitted to the hospital AGAIN last night! This is Faith’s 3rd admission this month. Faith is continuing to struggle with eating. The two days prior to her admission she was going extremely long periods of time with minimal comsumption. I have been doing lots of research and gathering more suggestions from the geneticist and genetic […]