"We Walk By Faith, Not By Sight" 2 Corinthians 5:7
I am happy to report that Faith has been healthy the last few months!! We are hoping this pattern will continue throughout the fall! Faith has lost some weight so we are working hard to get her weight back up. We had to increase the volume of her tube feedings since she is still not [...]
Faith went peach picking for the 1st time a few weeks ago. It was a pretty hot day so we went early in the morning and didn’t stay outside long. Faith struggles with body temperature regulation so we knew we had to be cautious but still allow her the experience. In less than a [...]
We attended the International Children’s Anophthalmia/Micropthalmia Network (ican) conference this past weekend in Boston, MA. This was Faith’s first time flying and she did an awesome job. We got very lucky and she slept on both flights! We started off our time in Boston by participating in the multidisciplinary clinic at Tufts Floating Hospital for [...]
Faith loves the water! Click on the link below to watch a video of her at the pool: Faith at the pool
Two years ago on April 14th, I returned to the doctor for a repeat ultrasound. The week before I had went in due to some issues I was having. The sonographer did the typical anatomy ultrasound and we found out we were having a girl! I was approximately 19 weeks pregnant at the time. The doctor [...]
Faith is 18 months old today! Wow, Faith is going to be 2 years old before we know it! The last week or so we have observed Faith doing some great things. She is starting to learn to play better with toys. She is trying to roll over more and more. She can get about half way right now. [...]
I received this poem in the mail this week from a friend. It is very applicable to life these days. I thought I would share… Faith by Richie McDonald Life can take you down a dead end road, In a blink of an eye, it can spin out of control. When you feel like you’re [...]
We had another busy week of doctor and therapy appointments. We met with several new doctors this week. While we were waiting to get into the new GI doctor, we tried Faith on continuous feedings which I mentioned in our last post. This proved to be a good decision for us. It seems that for [...]
The last week or so has been very rough for us. Faith is barely sleeping at all at night so we are running on fumes right now. Nevertheless, we still always try to keep up with life and seek out positive experiences for Faith! This past Sunday, the Magic House in St. Louis opened its doors free [...]
Thank you all for continuing to keep up with Faith’s progress. We appreciate all of your thoughts and prayers. We are so grateful for the kindness, generosity, and support of so many of you this holiday season as well as all year long. We are trying to work through many things right now and are [...]
