Posts tagged Endocrinologist

Making progress…

Faith has been doing really well this past month. She seems so much happier, healthier, and just more comfortable in general. The only real change that we made was starting her on Baclofen. This medication is used to reduce muscle tone. Not sure if it just a coincidence, but it really seems to be helping […]


Keeping the faith…

So far October has not been the most encouraging month. We have had several follow-up appointments with specialists and further testing to dig deeper into Faith’s feeding issues. Faith had her follow-up appointment with her endocrinologist and not surprisingly she has really not gained any weight in six months. We have a phenomenal dietitian that […]


Faith’s 1st Easter

There has been lots going on with Faith lately and we are in the process of trying to figure out what is causing the issues with Faith. Right now, along with other things her temperature regulation is a concern. We are trying to get Faith in to a neurologist as soon as possible. We are […]


Home for the Holidays

Faith was discharged today from the hospital with a NG tube that will help her get adequate nutrition until a G tube can be put in next week. Faith will return to the hospital next Tuesday for the surgery. As of now, we do not have a definitive answer for what is causing Faith not […]


AGAIN!

Faith was admitted to the hospital AGAIN last night! This is Faith’s 3rd admission this month. Faith is continuing to struggle with eating. The two days prior to her admission she was going extremely long periods of time with minimal comsumption. I have been doing lots of research and gathering more suggestions from the geneticist and genetic […]