Posts tagged Doctors

Summer Struggles & Decisions

We have spent a bit more time at the hospital this week than we had planned on. Faith has had a lingering cough for about 2 months now. For the most part, she has always struggled with clearing her throat and managing her own saliva. However, she was doing much better for awhile after we […]


Summer Struggles-Part 2

Unfortunately, since my last post Faith’s struggles continued. The extreme agitation, inconsolable crying, and rough nights left us very helpless, frustrated, and exhausted. I had been talking with neurology every few days trying to figure out what was going on with Faith as they were convinced that muscle tone was the cause of Faith’s discomfort. […]


Rough Week for SBF

Last week, Faith became a big sister! On the same day, Faith ended up in the ER with a very high temperature and was diagnosed with pneumonia. Luckily, she was able to go home and stay with grandparents as Mike and I were in the hospital with our new baby boy, Graeme. As the week […]


Home Sweet Home!

We are very happy to have Faith back home tonight sleeping in her own crib! Faith’s time at Ranken Jordan Pediatric Specialty Hospital helped us to work through some of our concerns with Faith’s nutrition and weight, oral feeding, and overall development. Faith started a new, higher calorie formula that she is tolerating very well. […]


First Week

Faith has been in the pediatric specialty hospital since Monday. Things are going pretty well. She has adjusted really well and has been working so hard. We are trying many new things in many areas. We are trying a new, higher calorie formula and have made a few changes with her feeding schedule. She is […]


Exhausting the Options

Faith’s last two weigh-ins have been rather discouraging. She is just not gaining weight despite everything we are trying. Today, she actually lost weight. Not a horrible loss (about 100 grams), but still a loss. This just makes no sense to me or Faith’s dietitian for that matter. Over the last three weeks, we have […]


Renewed Hope

We had another busy week of doctor and therapy appointments. We met with several new doctors this week. While we were waiting to get into the new GI doctor, we tried Faith on continuous feedings which I mentioned in our last post. This proved to be a good decision for us. It seems that for […]


17 Month Update

I am running low on physical and emotional energy right now so this will be a quick update.  We continue to be very sleep deprived and are just trying to get through each day. Faith is averaging a total of 5-6 hours of sleep a day. We are lucky if we can get a 2-3 hour stretch of sleep at a […]


Happy New Year!

We will be starting the new year off with many doctor appointments, consultations, and tests. January is going to be a busy month! Life continues to be very fast-paced for us with no sign of things slowing down anytime soon. We are hoping that we can get more information and answers to help Faith. Please […]


Smiles! :)

I really don’t think there is anything better than Faith’s incredible smile! It makes my heart so happy to see her happy and content! The last few days we have seen so many smiles. I think Faith is making up for the several weeks that she just wasn’t feeling well. After almost 5 weeks of […]


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