Posts tagged Caption

Christmas Struggles 2013

FYI-I started writing this post before Faith went into the hospital and just never got a chance to finish it. I picked up where I left off so it has ended up much longer than I had anticipated. Just wanted to write a quick post with a few updates but mostly to wish everyone a […]


There will be sun…

As the Annie musical song “Tomorrow” says, there will be sun! A healthy and happy Faith is sunlight in her world as well as ours. We are so thankful that Faith has been doing so well! Faith and I were fortunate to attend the Variety Production of Annie last weekend. Variety the Children’s Charity of […]


September Out and Abouts

I am happy to report that Faith has been healthy the last few months!! We are hoping this pattern will continue throughout the fall! Faith has lost some weight so we are working hard to get her weight back up. We had to increase the volume of her tube feedings since she is still not […]


Faith Update

Things have been a bit hectic since my last post. Faith was a sick little girl! She ended up being admitted to the hospital last week for a couple of days. She was admitted due to respiratory distress. Her respiration rate was double what it should have been, her breathing was very rapid, and overall […]


Out and About

Faith has been struggling with getting over being sick. It seems like she is always sick or trying to get over being sick. The last 4 weeks or so she has been running fevers or at least low-grade temps. She was also very congested, had a bad cough, and was vomiting. Faith’s reflux has also been really […]


Holiday Spirit

Faith enjoyed some tastes of Thanksgiving this year!  She just loved the cranberries! She did eat a little bit of potatoes but the cranberries really seemed to hit the spot for her and she did the best with them. We were very thankful that she did so great eating! We are very excited about the progress […]