Posts tagged Appointments

Summer Struggles & Decisions

We have spent a bit more time at the hospital this week than we had planned on. Faith has had a lingering cough for about 2 months now. For the most part, she has always struggled with clearing her throat and managing her own saliva. However, she was doing much better for awhile after we […]


Making progress…

Faith has been doing really well this past month. She seems so much happier, healthier, and just more comfortable in general. The only real change that we made was starting her on Baclofen. This medication is used to reduce muscle tone. Not sure if it just a coincidence, but it really seems to be helping […]


Keeping the faith…

So far October has not been the most encouraging month. We have had several follow-up appointments with specialists and further testing to dig deeper into Faith’s feeding issues. Faith had her follow-up appointment with her endocrinologist and not surprisingly she has really not gained any weight in six months. We have a phenomenal dietitian that […]


Renewed Hope

We had another busy week of doctor and therapy appointments. We met with several new doctors this week. While we were waiting to get into the new GI doctor, we tried Faith on continuous feedings which I mentioned in our last post. This proved to be a good decision for us. It seems that for […]


17 Month Update

I am running low on physical and emotional energy right now so this will be a quick update.  We continue to be very sleep deprived and are just trying to get through each day. Faith is averaging a total of 5-6 hours of sleep a day. We are lucky if we can get a 2-3 hour stretch of sleep at a […]


Another Road Trip…

We spent this past week at the Mayo Clinic again. We had a full week of consultations with doctors, follow-up appointments, and tests. It was very overwhelming and draining in many ways but we did got some things sorted out. We started the week off with Faith’s MRI. It went well and the results are […]


Life Update for the Wildschuetz Family

Faith and her parents(Mike and Bridget) recently moved from Kyle, TX back to their home state of Missouri(St. Louis area). Due to the ongoing needs of Faith, Mike and Bridget felt that it was very important to be close to family as both Mike and Bridget’s families are in the St. Louis area. Another motivator […]


Faith Update

This week has been full of appointments and assessments. Faith’s early intervention services should be starting very soon. Faith is doing ok following the G-tube surgery. She is struggling quite a bit with sleeping at night. We are not exactly sure what is going on with her but it seems that since we started the […]


SuperBabyFaith is Moving!

It is a bittersweet time for our family as we are preparing to move back to St. Louis. Mike has accepted a job that will provide our family with more financial support and stability. All of our family is there as well and we need the support from our family right now. I have resigned […]


Faith Update

Faith is doing well! She has a busy 2 weeks ahead with lots of appointments. Tomorrow, she will meet with her orientation and mobility(O&M) teacher. On Wednesday, she will start the conformer process with the ocularist. We are hoping that things go smoothly and aren’t too traumatic for Faith. She has been such a trooper […]


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