Life is busy!

Just wanted to write a quick post to update everyone since it has been a while since I last posted. Life is busy! Mama is back at work teaching some summer classes so Faith is spending lots of time with her grandparents.  As you can see in the picture, Faith and Trinity are getting along pretty well. Trin allows Faith to use her as a pillow!!

Faith is making lots of sounds and continuing to progress in her therapy sessions. We have been struggling more with her feedings. She is having difficulty eating her solid foods and she just seems very uncomfortable during her tube feedings. Sleep is still a struggle! The melatonin doesn’t even seem to be helping. Not sure that we have any other options right now. It is just so important that Faith gets adequate sleep and we are concerned that she isn’t getting enough sleep. She wakes very frequently and struggles to fall asleep at night.

The doctor appointments and therapy sessions are pretty constant. It seems like there is always something going on. In July, Faith will be going into the hospital for a few procedures but other than that hopefully things will be calm and we will have  a positive and progressive summer!!

Have a great summer everyone!!

Keeping the faith,