First Week

Faith has been in the pediatric specialty hospital since Monday. Things are going pretty well. She has adjusted really well and has been working so hard. We are trying many new things in many areas. We are trying a new, higher calorie formula and have made a few changes with her feeding schedule. She is tolerating her feedings well as of now. She has been getting OT, PT, and speech everyday Monday-Friday. OT is working on sensory and feeding and speech is working on feeding as well as vital stimulation. Up until Thursday, Faith was getting vital stimulation twice a day. The therapists felt that it might be too much for Faith so on Friday we decreased frequency to once a day for vital stimulation. PT is working with her on many of the things that we have been working on already at home as well as throwing in some new ideas. Faith goes in the pool for aqua therapy for her PT session twice a week. Faith has had very busy days and has been taking good naps! The first few days she seemed really content and was sleeping really well. The last few days she seems to be going back to her typical sleeping patterns and has been more fussy. The weekend will be much slower. She had her only scheduled therapy session for the weekend this morning which was OT. However, Faith had a rough night last night so she was tired and sleepy during the session. When she was more alert, we took her to do some work/play on our own so she had a chance to get something in. We are also doing all of her oral feeding attempts on our own this weekend with her. I am ready for Monday already when her entire team of therapists and doctors will be back. The observation piece is so important when it comes to figuring out how to progress with Faith. We plan on having a conference next week to determine next steps and when Faith will be going home. At this point, it seems that we need to figure out a plan that we could follow outpatient. Lots to be determined and how we will make it all work!

We are very fortunate that this facility is close to home and available to us for Faith’s needs. It truly is a nurturing place with very caring and knowledgeable staff.

I am so proud of Faith! Despite all of her daily challenges, she works so hard and is the most incredible little girl I have ever known! I am so lucky to be her mama and for the opportunity to learn so much from her everyday. I just hope that she knows and feels how much we truly love her.

Thank you all for your continued thoughts and prayers! We are so grateful for all of the love and support as we strive to help Faith reach her maximum potential!

Here is a picture of Faith getting a bit of a break today playing in the balls in the sensory integration room:

Keeping the faith,

Bridget