"We Walk By Faith, Not By Sight" 2 Corinthians 5:7
Faith has been doing really well this past month. She seems so much happier, healthier, and just more comfortable in general. The only real change that we made was starting her on Baclofen. This medication is used to reduce muscle tone. Not sure if it just a coincidence, but it really seems to be helping [...]
We are hoping that 2012 will bring progress and resolution to many things for Faith! Faith is still struggling with reflux and gas issues that can make her very miserable at times. We are still trying to get her back to handling the rate we were at with her tube feedings before she got sick. [...]
After three weeks of illness, we were very grateful to have a healthy little girl for Christmas!! We are enjoying Faith feeling better and the beautiful smiles that come along with her being happy! We have some neurology concerns that we are working on right now and we will be doing more follow-up with GI [...]
The last few weeks have been pretty rough for Faith. We have had two long ER visits and a hospital admission. About two weeks ago, Faith started with a stomach virus that took its toll on her little body. She had severe vomiting which resulted in her needing IV fluids. We just couldn’t get enough [...]
We are very happy to have Faith back home tonight sleeping in her own crib! Faith’s time at Ranken Jordan Pediatric Specialty Hospital helped us to work through some of our concerns with Faith’s nutrition and weight, oral feeding, and overall development. Faith started a new, higher calorie formula that she is tolerating very well. [...]
Faith has been in the pediatric specialty hospital since Monday. Things are going pretty well. She has adjusted really well and has been working so hard. We are trying many new things in many areas. We are trying a new, higher calorie formula and have made a few changes with her feeding schedule. She is [...]
Faith’s last two weigh-ins have been rather discouraging. She is just not gaining weight despite everything we are trying. Today, she actually lost weight. Not a horrible loss (about 100 grams), but still a loss. This just makes no sense to me or Faith’s dietitian for that matter. Over the last three weeks, we have [...]
So far October has not been the most encouraging month. We have had several follow-up appointments with specialists and further testing to dig deeper into Faith’s feeding issues. Faith had her follow-up appointment with her endocrinologist and not surprisingly she has really not gained any weight in six months. We have a phenomenal dietitian that [...]
I recently submitted an application and Faith was accepted into the Inspiration Through Art program. You can click on the link to read more about this program but it provides free photo sessions for children with special needs and children fighting serious illnesses. We are so grateful for the opportunity to participate in this program. [...]
I am happy to report that Faith has been healthy the last few months!! We are hoping this pattern will continue throughout the fall! Faith has lost some weight so we are working hard to get her weight back up. We had to increase the volume of her tube feedings since she is still not [...]
