Category: Treatment

Pneumonia, AGAIN…

Faith has pneumonia, AGAIN! This is the 4th time in her 19 months of life. We ended up in the ER Saturday when Faith had a fever in the 104 degree range. It was kinda weird because she wasn’t really symptomatic besides just seeming very lethargic and warm. She does have a bit of a [...]


Renewed Hope

We had another busy week of doctor and therapy appointments. We met with several new doctors this week. While we were waiting to get into the new GI doctor, we tried Faith on continuous feedings which I mentioned in our last post. This proved to be a good decision for us. It seems that for [...]


A Trip to the Magic House

The last week or so has been very rough for us. Faith is barely sleeping at all at night so we are running on fumes right now.  Nevertheless, we still always try to keep up with life and seek out positive experiences for Faith! This past Sunday, the Magic House in St. Louis opened its doors free [...]


Another Road Trip…

We spent this past week at the Mayo Clinic again. We had a full week of consultations with doctors, follow-up appointments, and tests. It was very overwhelming and draining in many ways but we did got some things sorted out. We started the week off with Faith’s MRI. It went well and the results are [...]


Happy New Year!

We will be starting the new year off with many doctor appointments, consultations, and tests. January is going to be a busy month! Life continues to be very fast-paced for us with no sign of things slowing down anytime soon. We are hoping that we can get more information and answers to help Faith. Please [...]


Miracle on Faith Street

It seems that Faith’s little body has finally figured out how to sleep. Some nights are better than others but compared to what we had been dealing with we are feeling relieved. Since Faith got relief from the congestion, she has had a couple of nights that I think we can actually say that she ”slept [...]


Procedure Update

Faith’s procedure went very well this week. We were in the hospital for about 2 days and are back home now. We are very thankful that everything went smoothly. Faith did much better post-anesthesia this time. We are very glad that we enforced the need for precautions. After waking up from the procedure, Faith was [...]


Smiles! :)

I really don’t think there is anything better than Faith’s incredible smile! It makes my heart so happy to see her happy and content! The last few days we have seen so many smiles. I think Faith is making up for the several weeks that she just wasn’t feeling well. After almost 5 weeks of [...]


Faith’s 1st Hearing Aids

After Faith was born, we found out that Faith had some type of hearing loss. After a variety of tests, it was determined that Faith has a mild hearing loss. We were very grateful that the hearing loss was only mild considering the initial possibilities weren’t so great. Faith has a flat, bilateral loss in [...]


Our True Love

We just love our little sweetheart more and more every day! Faith appears to be growing well! We are very anxious for her appointment with the dietitian tomorrow to find out how much weight she has gained. She is looking much healthier! It is February which means Faith will be 5 months old very soon. [...]


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