Category: Featured

Prayers for Faith

As I mentioned in my last post, Faith has been struggling since we weaned her from the diazepam. She has been very restless and agitated. She is barely sleeping at night. She just cries and screams when she is going through these rough episodes of extreme involuntary movement(chorea) and increased muscle tone. Faith has rough […]


Happy 4th Birthday, Super Baby Faith!

As I type this post, I feel so grateful for so much! I thank God for every day with Faith; every smile, every cuddle, every response that indicates understanding. I get emotional as I type this because I know things could be so different. The outcome could have been so much worse many times. I […]


Back to School

Faith is back to school and doing great! She just started her second year of pre-school. Her daily notes from her teachers and therapists have been so positive and encouraging. Faith is definitely making progress! Faith seems to be understanding more and showing a response more often to what is going on around her. I […]


United Way of Greater St. Louis Shares Faith’s Story

Click on the link below to read the article: https://www.stl.unitedway.org/whowehelp/stories_home/tabid/2727/articleType/ArticleView/articleId/2727/Keeping-the-faith.aspx. My favorite part of the article: “Faith is teaching us important lessons,” said Debbie Chapuis, family support services coordinator of the Delta Gamma Center. “Each smile or giggle from Faith is a reminder that being able to see, talk or walk is less important than […]


ICAN Conference 2013

We are back from Chicago! I wanted to write a post ASAP so things would be fresh on my mind. Also, I have had so many people ask me already how the conference and trip overall went that I wanted to follow-up with everyone. The short answer is: GREAT!!! First off, Faith had an incredible […]


Chorea

Faith had her appointment at the movement disorder clinic this past week.  The neurologist observed Faith and explained Faith’s movement using the term, “chorea”. According to the NIH, chorea is an abnormal involuntary movement disorder, one of a group of neurological disorders called dyskinesias, which are caused by overactivity of the neurotransmitter dopamine in the […]


Happy Summer!

It is officially summer break for Faith. This is the first time in 3.5 years that she doesn’t have a regular full therapy schedule. She is going to get a little bit of a break but we are trying to keep her as engaged and stimulated as possible during her break with various activities as […]


Run for Sight 2013 Wrap-up

A BIG thanks to all of you who supported Team Super Baby Faith this year and helped us raise money to benefit the Delta Gamma Center for Children with Visual Impairments!! We truly appreciate your support! Great job to all of you who came out and walked or ran with us despite the rainy weather. […]


Spring Update

It is hard to believe that Faith’s first year of school is almost over! It seems like I just posted her first day of school pictures and now it is May and Faith’s regular school year ends this week! Faith had a great transition to school and has done very well. Faith will attend a […]


Faith makes an appearance on Show-Me St. Louis

Faith appeared on the Window on St. Louis portion of the Show-Me St. Louis TV show on KSDK Newschannel 5 this past week. Faith represented the Delta Gamma Center for Children with Visual Impairments and helped promote the upcoming Run for Sight that will benefit this invaluable organization that supports many families in the St. […]


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