Super Baby Faith

I am happy to report that Faith has been healthy the last few months!! We are hoping this pattern will continue throughout the fall! Faith has lost some weight so we are working hard to get her weight back up. We had to increase the volume of her tube feedings since she is still not [...]

Today, we celebrate Faith’s 2nd birthday! Life continues to be challenging and definitely not without struggles, but we are so grateful for our Super Baby Faith. She is such a blessing and we couldn’t love her more! It is hard to believe that next year at this time she will be starting school and getting [...]

  Faith went peach picking for the 1st time a few weeks ago. It was a pretty hot day so we went early in the morning and didn’t stay outside long. Faith struggles with body temperature regulation so we knew we had to be cautious but still allow her the experience. In less than a [...]

Faith loves the water! Click on the link below to watch a video of her at the pool: Faith at the pool

Faith just transitioned to her big girl car seat! She is looking very healthy in this photo! We are so thankful for Faith’s growth! She is still in the less than 3 percentile for her age, but for her height and weight she is in a healthy range. Sorry, for the delay since my last [...]

Faith has pneumonia, AGAIN! This is the 4th time in her 19 months of life. We ended up in the ER Saturday when Faith had a fever in the 104 degree range. It was kinda weird because she wasn’t really symptomatic besides just seeming very lethargic and warm. She does have a bit of a [...]

Two years ago on April 14th, I returned to the doctor for a repeat ultrasound. The week before I had went in due to some issues I was having. The sonographer did the typical anatomy ultrasound and we found out we were having a girl! I was approximately 19 weeks pregnant at the time.  The doctor [...]

Things have been a bit hectic since my last post. Faith was a sick little girl! She ended up being admitted to the hospital last week for a couple of days. She was admitted due to respiratory distress. Her respiration rate was double what it should have been, her breathing was very rapid, and overall [...]

The last week or so has been very rough for us. Faith is barely sleeping at all at night so we are running on fumes right now.  Nevertheless, we still always try to keep up with life and seek out positive experiences for Faith! This past Sunday, the Magic House in St. Louis opened its doors free [...]

We will be starting the new year off with many doctor appointments, consultations, and tests. January is going to be a busy month! Life continues to be very fast-paced for us with no sign of things slowing down anytime soon. We are hoping that we can get more information and answers to help Faith. Please [...]