Super Baby Faith

So with a few extra minutes today, I will take the time to update: I am going to try my best to keep the website updated but please forgive me if my posts aren’t as frequent. Life is a bit hectic right now with a newborn baby and a 2.5 year old with special needs. [...]

Last week, Faith became a big sister! On the same day, Faith ended up in the ER with a very high temperature and was diagnosed with pneumonia. Luckily, she was able to go home and stay with grandparents as Mike and I were in the hospital with our new baby boy, Graeme. As the week [...]

Faith is continuing to be doing really well! She is all smiles these days! It is just so incredible for us to see her so happy! I even captured one of her giggle moments on camera: IMG_0096 It seems that Faith is really recognizing our voices more consistently and that we are making some progress [...]

We are hoping that 2012 will bring progress and resolution to many things for Faith! Faith is still struggling with reflux and gas issues that can make her very miserable at times. We are still trying to get her back to handling the rate we were at with her tube feedings before she got sick. [...]

After three weeks of illness, we were very grateful to have a healthy little girl for Christmas!! We are enjoying Faith feeling better and the beautiful smiles that come along with her being happy! We have some neurology concerns that we are working on right now and we will be doing more follow-up with GI [...]

The last few weeks have been pretty rough for Faith. We have had two long ER visits and a hospital admission. About two weeks ago, Faith started with a stomach virus that took its toll on her little body. She had severe vomiting which resulted in her needing IV fluids. We just couldn’t get enough [...]

We are very happy to have Faith back home tonight sleeping in her own crib! Faith’s time at Ranken Jordan Pediatric Specialty Hospital helped us to work through some of our concerns with Faith’s nutrition and weight, oral feeding, and overall development. Faith started a new, higher calorie formula that she is tolerating very well. [...]

Faith has been in the pediatric specialty hospital since Monday. Things are going pretty well. She has adjusted really well and has been working so hard. We are trying many new things in many areas. We are trying a new, higher calorie formula and have made a few changes with her feeding schedule. She is [...]

Faith’s last two weigh-ins have been rather discouraging. She is just not gaining weight despite everything we are trying. Today, she actually lost weight. Not a horrible loss (about 100 grams), but still a loss. This just makes no sense to me or Faith’s dietitian for that matter. Over the last three weeks, we have [...]

I recently submitted an application and Faith was accepted into the Inspiration Through Art program. You can click on the link to read more about this program but it provides free photo sessions for children with special needs and children fighting serious illnesses. We are so grateful for the opportunity to participate in this program. [...]