Category: Anophthalmia – Microphthalmia (A/M)

Articles and posts related to anophthalmia or microphthalmia (A/M).

New Findings, New Questions, New Treatment

Faith’s muscle tone has been a concern of ours for quite some time now. It makes her uncomfortable and is affecting her ability to make progress in many areas. Faith has very low tone in her trunk and neck and tends to have increased tone in her extremities. She struggled even as an infant being […]


ican conference 2011

We attended the International Children’s Anophthalmia/Micropthalmia Network (ican) conference this past weekend in Boston, MA.  This was Faith’s first time flying and she did an awesome job. We got very lucky and she slept on both flights! We started off our time in Boston by participating in the multidisciplinary clinic at Tufts Floating Hospital for […]


Faith’s Procedure & Life Update

Faith went into the hospital last week for a procedure that involved duct probing. Thank you to everyone who prayed for her. The procedure went well. However, the days following were a bit stressful.  Faith has been under anesthesia before without any issues. This time it seems that she had some significant side effects of […]


SuperBabyFaith’s Story Currently on abcnews.com

Check out SuperBabyFaith’s story and video interview with Mike and I on today’s home page health section of abcnews.com: http://abcnews.go.com/Health/EyeHealth/baby-faith-born-eyes/story?id=9035680


Gentle Care for the Anophthalmic or Microphthalmic Child

I got this article in an email from an oculoplastic surgeon tonight. It is very informative and shares the approach this doctor believes is the most effective. Since I recently posted about the hydrogel expanders, I thought I would share this perspective. Once you read about the different options, you will understand how difficult it […]


Philadelphia-Is it Feasable?

I spent almost an hour on the phone this morning with the nurse practitioner that works with a Pediatric Ophthalmologist and a Pediatric Oculo Plastic Surgeon at Children’s Hospital of Philadelphia (CHOP). Instead of using conformers, he uses hydrogel implants to expand the eye socket. They basically do the same thing as conformers which keep the eye […]


Hydrogel Implants-An Option for Faith

IOP Inc. Launches Osmed™ Hydrogel Tissue Expander Technology for the Treatment of Congenital Microphthalmos/Anophthalmos COSTA MESA, California – March 15, 2002 – IOP Inc., the premier developer and distributor of specialty devices for surgery, has launched yet another unique oculoplastic surgical technology. The Osmed™ Hydrogel Expander technology, a new advancement in tissue expansion, will be […]


What is Anophthalmia – Microphthalmia (A/M)?

In layman’s terms Anophthalmia is the medical term that describes the complete absence of the globe and ocular tissue (eye) from the orbit. Microphthalmia is the term used to describe small eyes and it can range from barely noticeable to severe. Severe microphthalmia is essentially the same as anophthalmia. People usually use the terms Anophthalmia […]