Posts by Bridget Wildschuetz

Stuck…

Faith has been sick for almost 6 weeks now. She has been stuck at this same point for the most part since we brought her home from the hospital. We still cannot completely get her off oxygen. We get her off for a day or so and then have to put her back on. Last […]


Super Baby Faith is now on Facebook!

You can now keep up with Faith’s progress on facebook. For quick updates about Faith, please like Super Baby Faith on facebook.


Christmas Struggles 2013

FYI-I started writing this post before Faith went into the hospital and just never got a chance to finish it. I picked up where I left off so it has ended up much longer than I had anticipated. Just wanted to write a quick post with a few updates but mostly to wish everyone a […]


Thankful Thursday

I am happy to share some positive things that have been happening with Faith since my last post! Faith is still struggling with the chorea and her tone but we recently started her on a new medication called Onfi that is calming and slowing her down a bit and seems to be helping her be […]


Progress and Pumpkins

Faith is doing much better since my last post. She appears to be much happier and comfortable. The biggest issue we are having right now is her feedings. We have been able to increase her rate for her tube feedings but it is a very slow process in order for her to tolerate the increases. […]


A Whirlwind of a Week

Wow! What a whirlwind it has been since my last post. Faith had an appointment last Tuesday with her GI doctor. The doctor was very concerned with Faith’s extreme agitation during her appointment. She sent us to get an x-ray and ultrasound to rule out intussusception.  The x-ray and ultrasound looked fine so that was […]


Prayers for Faith

As I mentioned in my last post, Faith has been struggling since we weaned her from the diazepam. She has been very restless and agitated. She is barely sleeping at night. She just cries and screams when she is going through these rough episodes of extreme involuntary movement(chorea) and increased muscle tone. Faith has rough […]


Happy 4th Birthday, Super Baby Faith!

As I type this post, I feel so grateful for so much! I thank God for every day with Faith; every smile, every cuddle, every response that indicates understanding. I get emotional as I type this because I know things could be so different. The outcome could have been so much worse many times. I […]


Back to School

Faith is back to school and doing great! She just started her second year of pre-school. Her daily notes from her teachers and therapists have been so positive and encouraging. Faith is definitely making progress! Faith seems to be understanding more and showing a response more often to what is going on around her. I […]


United Way of Greater St. Louis Shares Faith’s Story

Click on the link below to read the article: https://www.stl.unitedway.org/whowehelp/stories_home/tabid/2727/articleType/ArticleView/articleId/2727/Keeping-the-faith.aspx. My favorite part of the article: “Faith is teaching us important lessons,” said Debbie Chapuis, family support services coordinator of the Delta Gamma Center. “Each smile or giggle from Faith is a reminder that being able to see, talk or walk is less important than […]


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