As 2015 comes to an end, I wanted to find a few minutes to summarize Faith’s past year. As I type today, I can find peace in how she is doing right now and hope in what 2016 will bring. I would say that 2015 was Faith’s toughest year yet. The heartbreaking three months that she spent in the hospital this past spring/summer were filled with no real answers, not much direction, and many fears. Faith suffered so much and her quality of life was a big question mark. Since then, she still struggles with the neurological stuff but for the most part we have been able to manage it at home. She had a few short hospital admissions this fall with respiratory viruses but thankfully she bounced back well. Faith’s strength and resilience is amazing.
Faith started kindergarten in August! She seems to love school and is thriving! Her school is awesome and very equip to meet her needs. She is challenged daily to learn and explore new things. Mama can’t compete with the fifteen people(teachers, therapists, etc.) that work with her throughout the course of her school week! I love how engaging and stimulating school is for her. She is so loved and is such a joy to everyone at school! Faith has a one-on-one nurse with her at school to handle the medical part of her care and that helps ensure that she can be at school unless she is sick of course. She does come home after school pretty tired! Unfortunately, her nights are still unpredictable and sleep is often still an issue. Some nights/weeks/months are better than others.
Faith’s smile continues to be the highlight of each day. She is also using her smile to communicate that she means “yes” or wants more of something. Her frown or refusal to smile means “no” or that she is done with an activity. At home and school, she is being more consistent with her communication.
This past summer we moved into a more accessible home that is working much better for Faith’s mobility and physical needs. Faith and our family were blessed this Christmas by the generosity and kindness of others to help our family buy a wheelchair accessible van to transport Faith and her new very heavy wheelchair! It is helping so much already and truly makes a difference on a daily basis. Faith can now stay in her wheelchair which helps avoid extra lifting and just makes going places a much smoother process in general. She is much more comfortable and my back is thankful as well!
It was so nice to wake up on Christmas morning at home this year! Faith has spent the last couple of years in the hospital on Christmas so good health this time of year is not taken for granite.
Thank you all for your love, prayers, and support all year long. Life is not without struggles, but I continue to trust in God’s plan and purpose for Faith. Wishing everyone a healthy and happy 2016!